Publications & Posters
Discover how PicnicHealth data is powering cutting-edge medical research.
Filters
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0accda6762e32b33ada_66577ebcd4a4feb3cf420927_OJRD%2520Thumbnail%2520880x700.png)
Progressive Supranuclear Palsy (PSP) Disease Progression, Management, and Healthcare Resource Utilization: A Retrospective Observational Study in the US and Canada
Orphanet Journal of Rare Diseases
|
May 29, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0accda6762e32b33ada_66577ebcd4a4feb3cf420927_OJRD%2520Thumbnail%2520880x700.png)
Progressive Supranuclear Palsy (PSP) Disease Progression, Management, and Healthcare Resource Utilization: A Retrospective Observational Study in the US and Canada
Orphanet Journal of Rare Diseases
|
May 29, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0ae6e6486bb6b298ec6_663e8420e825c4b6c1a4da1f_Thumbnail%2520-%2520Molecular%2520Genetics%2520and%2520Metabolism.png)
Major clinical events and healthcare resource use among patients with long-chain fatty acid oxidation disorders in the United States: Results from LC-FAOD Odyssey program
Molecular Genetics and Metabolism
|
May 1, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0ae6e6486bb6b298ec6_663e8420e825c4b6c1a4da1f_Thumbnail%2520-%2520Molecular%2520Genetics%2520and%2520Metabolism.png)
Major clinical events and healthcare resource use among patients with long-chain fatty acid oxidation disorders in the United States: Results from LC-FAOD Odyssey program
Molecular Genetics and Metabolism
|
May 1, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0acaffb8c51881c184c_663e84e1a23fab871f596d4b_Thumbnail%2520-%2520BMJ%2520Open%2520Gastro.png)
Pruritus in primary biliary cholangitis is under-recorded in patient medical records
BMJ Open Gastroenterology
|
March 29, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0acaffb8c51881c184c_663e84e1a23fab871f596d4b_Thumbnail%2520-%2520BMJ%2520Open%2520Gastro.png)
Pruritus in primary biliary cholangitis is under-recorded in patient medical records
BMJ Open Gastroenterology
|
March 29, 2024
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a990f2e881c0a16780_65788e7f75ed09b1e5d65831_SABCS%2520thumbnail.png)
EVOLVE: An Ambispective, Patient-Centered, Real-World Early-Stage Breast Cancer Registry in the United States
San Antonio Breast Cancer Symposium
|
December 8, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a990f2e881c0a16780_65788e7f75ed09b1e5d65831_SABCS%2520thumbnail.png)
EVOLVE: An Ambispective, Patient-Centered, Real-World Early-Stage Breast Cancer Registry in the United States
San Antonio Breast Cancer Symposium
|
December 8, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0abe1ee19c11dfddaca_655533962d8f81fcf7725c4a_ISPOR%2520EU%2520thumbnail.png)
Methods of Estimating Annualized Bleed Rates from Medical Records Among Patients with Hemophilia A
ISPOR EU 2023
|
November 14, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0abe1ee19c11dfddaca_655533962d8f81fcf7725c4a_ISPOR%2520EU%2520thumbnail.png)
Methods of Estimating Annualized Bleed Rates from Medical Records Among Patients with Hemophilia A
ISPOR EU 2023
|
November 14, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a8a983542a57238930_6542987e0d9181c689535ffa_ICPE%25202023%2520ISPE%2520logo.png)
Characterizing patient care before and after a myasthenia gravis diagnosis
ICPE 2023
|
August 27, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a8a983542a57238930_6542987e0d9181c689535ffa_ICPE%25202023%2520ISPE%2520logo.png)
Characterizing patient care before and after a myasthenia gravis diagnosis
ICPE 2023
|
August 27, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a70eca767a743df5ac_65429686a19a66b4b47f9876_Bleeding%2520Disorder%2520Conference.png)
Alignment of Prophylactic Medication Data in Medical Records and Patient-Reported Surveys Among Patients with Hemophilia A
The Annual Bleeding Disorders Conference
|
August 17, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a70eca767a743df5ac_65429686a19a66b4b47f9876_Bleeding%2520Disorder%2520Conference.png)
Alignment of Prophylactic Medication Data in Medical Records and Patient-Reported Surveys Among Patients with Hemophilia A
The Annual Bleeding Disorders Conference
|
August 17, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a856a0a4b4662ade39_639258f51c9d2ae41fc4ba5f_Thumbnail%2520-%2520ISPOR.png)
Exploring The Path To Diagnosis For Patients With Myasthenia Gravis Using Real-World Data
ISPOR 2023
|
May 10, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a856a0a4b4662ade39_639258f51c9d2ae41fc4ba5f_Thumbnail%2520-%2520ISPOR.png)
Exploring The Path To Diagnosis For Patients With Myasthenia Gravis Using Real-World Data
ISPOR 2023
|
May 10, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a94d87a49fb8b03bc3_645d718f6881ba8c7f6e8019_PD.png)
EMPOWER AD: A NOVEL, PATIENT-CENTRIC, LONGITUDINAL, CLINICAL DATASET IN THE UNITED STATES
AD/PD 2023
|
March 28, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a94d87a49fb8b03bc3_645d718f6881ba8c7f6e8019_PD.png)
EMPOWER AD: A NOVEL, PATIENT-CENTRIC, LONGITUDINAL, CLINICAL DATASET IN THE UNITED STATES
AD/PD 2023
|
March 28, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a98c54ac43edc4afe3_64219ebe61923a3ebf54f3c0_Thumbnail%2520-%2520HTRS.png)
Common Documentation Errors in the Electronic Health Records of Persons with Hemophilia B
HTRS 2023 Scientific Symposium
|
March 12, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a98c54ac43edc4afe3_64219ebe61923a3ebf54f3c0_Thumbnail%2520-%2520HTRS.png)
Common Documentation Errors in the Electronic Health Records of Persons with Hemophilia B
HTRS 2023 Scientific Symposium
|
March 12, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a98c54ac43edc4afe3_64219ebe61923a3ebf54f3c0_Thumbnail%2520-%2520HTRS.png)
Treatment burden and unmet needs in hemophilia patients with inhibitors: Results from a real-world observational study in the United States
HTRS 2023 Scientific Symposium
|
March 12, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a98c54ac43edc4afe3_64219ebe61923a3ebf54f3c0_Thumbnail%2520-%2520HTRS.png)
Treatment burden and unmet needs in hemophilia patients with inhibitors: Results from a real-world observational study in the United States
HTRS 2023 Scientific Symposium
|
March 12, 2023
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characteristics and Healthcare Utilization of Patients with Mild or Moderate Hemophilia A in the US - An Analysis from the PicnicHealth Cohort
ASH Annual Meeting and Exposition
|
December 10, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characteristics and Healthcare Utilization of Patients with Mild or Moderate Hemophilia A in the US - An Analysis from the PicnicHealth Cohort
ASH Annual Meeting and Exposition
|
December 10, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characteristics and Bleeding Behavior of Females with Mild Hemophilia A: Longitudinal Study from PicnicHealth Hemophilia A Database
ASH Annual Meeting and Exposition
|
December 10, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characteristics and Bleeding Behavior of Females with Mild Hemophilia A: Longitudinal Study from PicnicHealth Hemophilia A Database
ASH Annual Meeting and Exposition
|
December 10, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Multiyear, Real-World, Retrospective Cohort Study Using a Patient-Centric Approach to Evaluate the Burden of Hemophilia B in the United States
ASH Annual Meeting & Exposition
|
November 15, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Multiyear, Real-World, Retrospective Cohort Study Using a Patient-Centric Approach to Evaluate the Burden of Hemophilia B in the United States
ASH Annual Meeting & Exposition
|
November 15, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a8d9915dbaf4435a26_63925a4f52013a21ae356881_Thumbnail%2520-%2520The%2520Liver%2520Meeting.png)
Characterizing primary biliary cholangitis (PBC) patients in the real world: demographics and treatment characteristics of the PicnicHealth PBC cohort
AASLD The Liver Meeting 2022
|
November 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a8d9915dbaf4435a26_63925a4f52013a21ae356881_Thumbnail%2520-%2520The%2520Liver%2520Meeting.png)
Characterizing primary biliary cholangitis (PBC) patients in the real world: demographics and treatment characteristics of the PicnicHealth PBC cohort
AASLD The Liver Meeting 2022
|
November 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a856a0a4b4662ade39_639258f51c9d2ae41fc4ba5f_Thumbnail%2520-%2520ISPOR.png)
Identifying Flares in Lupus Nephritis Patients by Combining Structured and Unstructured Medical Records with Lab Data
ISPOR EU 2022
|
November 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a856a0a4b4662ade39_639258f51c9d2ae41fc4ba5f_Thumbnail%2520-%2520ISPOR.png)
Identifying Flares in Lupus Nephritis Patients by Combining Structured and Unstructured Medical Records with Lab Data
ISPOR EU 2022
|
November 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a72c79ff3424d23295_63925758a52727705911f32f_Thumbnail%2520-%2520ECTRIMS.png)
COVID-19 Vaccination Patterns and Outcomes Among Persons With Multiple Sclerosis in the FlywheelMS Cohort
ECTRIMS 2022
|
October 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a72c79ff3424d23295_63925758a52727705911f32f_Thumbnail%2520-%2520ECTRIMS.png)
COVID-19 Vaccination Patterns and Outcomes Among Persons With Multiple Sclerosis in the FlywheelMS Cohort
ECTRIMS 2022
|
October 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a82e0d6dff92439016_64669f622a1f0b5a888d47ac_EHA.webp)
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a82e0d6dff92439016_64669f622a1f0b5a888d47ac_EHA.webp)
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a82e0d6dff92439016_64669f622a1f0b5a888d47ac_EHA.webp)
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a82e0d6dff92439016_64669f622a1f0b5a888d47ac_EHA.webp)
Characterizing sickle cell disease and burden of illness in the United States of America: a retrospective analysis of real-world data
EHA 2022 Hybrid Congress
|
June 1, 2022
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
A novel methodology for building longitudinal, patient-centric real world datasets in hemophilia A
ASH Annual Meeting & Exposition
|
December 3, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
A novel methodology for building longitudinal, patient-centric real world datasets in hemophilia A
ASH Annual Meeting & Exposition
|
December 3, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characterizing mild and moderate hemophilia A patients in the real world: a patient-centric approach
ASH Annual Meeting & Exposition
|
December 3, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
Characterizing mild and moderate hemophilia A patients in the real world: a patient-centric approach
ASH Annual Meeting & Exposition
|
December 3, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a73cda5ce0b320774e_6466a230304ab390fac09d61_ACR.webp)
Addition of narrative text abstraction to ICD-based abstraction significantly improves identification of lupus nephritis in real-world data
ACR Convergence 2021
|
November 6, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a73cda5ce0b320774e_6466a230304ab390fac09d61_ACR.webp)
Addition of narrative text abstraction to ICD-based abstraction significantly improves identification of lupus nephritis in real-world data
ACR Convergence 2021
|
November 6, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0aa90f2e881c0a168b5_6466a24643730a617cb99d1c_Actrims.webp)
FlywheelMS: Stratification of anxiety and depression by MS subtype as captured in digitized health records
ACTRIMS 2021 Virtual Forum
|
February 25, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0aa90f2e881c0a168b5_6466a24643730a617cb99d1c_Actrims.webp)
FlywheelMS: Stratification of anxiety and depression by MS subtype as captured in digitized health records
ACTRIMS 2021 Virtual Forum
|
February 25, 2021
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0ad2426c32bf1b4047c_628db9cc93895475a491f534_608f71486c94553c43d5eee0_abstract-2.png)
The Neat-HER virtual registry: Results on HER2+ breast cancer patients receiving neratinib as extended adjuvant therapy
San Antonio Breast Cancer Symposium
|
December 9, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0ad2426c32bf1b4047c_628db9cc93895475a491f534_608f71486c94553c43d5eee0_abstract-2.png)
The Neat-HER virtual registry: Results on HER2+ breast cancer patients receiving neratinib as extended adjuvant therapy
San Antonio Breast Cancer Symposium
|
December 9, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79a34de375566a253_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
A patient-centric approach to improve the understanding of sickle cell disease using real-world data
ASH Annual Meeting & Exposition
|
December 5, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79a34de375566a253_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
A patient-centric approach to improve the understanding of sickle cell disease using real-world data
ASH Annual Meeting & Exposition
|
December 5, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
COMMODORE Cohort: A real-world, non-interventional cohort study to evaluate the safety and effectiveness of C5 inhibitors in patients with PNH
Blood (2020) 136 (Supplement 1): 31-32
|
November 5, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a79f7b62e6467bd222_64669f7868dcc33a1f5dcb22_Thumbnail.webp)
COMMODORE Cohort: A real-world, non-interventional cohort study to evaluate the safety and effectiveness of C5 inhibitors in patients with PNH
Blood (2020) 136 (Supplement 1): 31-32
|
November 5, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0aafb4f56a4b7ca1a39_628db9c933669df4df4f5805_608f727a3583f52fb844628f_abstract-1.png)
HD Constellation: A novel patient-centered approach to enriching clinical datasets by combining medical record chart review and Enroll-HD
MDS Virtual Congress 2020
|
September 12, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0aafb4f56a4b7ca1a39_628db9c933669df4df4f5805_608f727a3583f52fb844628f_abstract-1.png)
HD Constellation: A novel patient-centered approach to enriching clinical datasets by combining medical record chart review and Enroll-HD
MDS Virtual Congress 2020
|
September 12, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a9321ae916c85eea1a_6466a24ed04c8633d2f851b4_MS.webp)
Collecting real-world MRI in multiple sclerosis: preliminary results from FlywheelMS
MSVirtual 2020
|
September 11, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a9321ae916c85eea1a_6466a24ed04c8633d2f851b4_MS.webp)
Collecting real-world MRI in multiple sclerosis: preliminary results from FlywheelMS
MSVirtual 2020
|
September 11, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a9321ae916c85eea1a_6466a24ed04c8633d2f851b4_MS.webp)
FlywheelMS: The prevalence of multiple sclerosis subtypes in digitized health records
MSVirtual 2020
|
September 11, 2020
![](https://cdn.prod.website-files.com/6657fa038d9d31e3ca73e154/6658d0a9321ae916c85eea1a_6466a24ed04c8633d2f851b4_MS.webp)
FlywheelMS: The prevalence of multiple sclerosis subtypes in digitized health records
MSVirtual 2020
|
September 11, 2020
No results found.
There are no results with this criteria. Try changing your search.